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Darier disease—A review highlighting new insights from the Darier Disease International Task Force

  • Sofia Labbouz
  • , Alain Hovnanian*
  • , Grace Xiong
  • , Dedee Frances Murrell
  • , Simon M. Mueller
  • , Khaled Ezzedine
  • , Nessa Aghazadeh Mohandesi
  • , Ahmed Salem Aldhaheri
  • , Nissim Asayag
  • , Eulalia Baselga
  • , Chen Nadler
  • , Keith Choate
  • , Chia Yu Chu
  • , John Robert Edminister
  • , Emmanuella Guenova
  • , Melis Gönülal
  • , Antoni Gostynski
  • , Ankan Gupta
  • , Lalit Kumar Gupta
  • , Juliette Mazereeuw-Hautier
  • Wolfram Hoetzenecker, Peter Itin, Marek Jankowski, Akiharu Kubo, Haur Yueh Lee, Julia Scott Lehman, Anfisa Lepekhova, Márta Medvecz, Jemima E. Mellerio, Verena Moosbrugger-Martinz, Amy S. Paller, Dóra Plázár, Amadeu José Rodrigues Queiróz, Josep Riera-Monroig, Ralph Rosa, Matthias Schmuth, Maella Severino Freire, Itzhak Shabat, Jonathan Shapiro, Cory L. Simpson, Diego Soto-García, Alexander J. Stratigos, Gianluca Abel Tadini, Takuya Takeichi, Kaushal K. Verma, Jakob D. Wikström, Alexander Zink, Michael Ziv, Alexander Navarini, Roni Pircha Dodiuk-Gad*
*Corresponding author for this work

Research output: Contribution to journalReview articlepeer-review

Abstract

Darier disease (DD) is a rare autosomal dominant genodermatosis. This comprehensive review, developed by the Darier Disease International Task Force (DDITF), consolidates current knowledge on the genetic basis, molecular pathophysiology, clinical presentation, diagnosis and management of DD, offering a global perspective that unites shared expertise. The disease arises from pathogenic variants in the ATP2A2 gene, which encodes sarco/endoplasmic reticulum Ca2+-ATPase isoform 2 (SERCA2), leading to disrupted calcium homeostasis and impaired desmosomal integrity. Clinically, DD is classified based on lesion type (classic vs. non-classic) and is often accompanied by significant extracutaneous manifestations. Management remains challenging and requires a multifaceted approach, including topical therapies, systemic retinoids and lifestyle modifications. Emerging treatments that target the underlying molecular mechanisms offer promise for improved outcomes. This review aims to provide an updated reference and practical guidance for clinicians involved in the care and study of DD.

Original languageEnglish
JournalJournal of the European Academy of Dermatology and Venereology
DOIs
StateAccepted/In press - 2026

Bibliographical note

Publisher Copyright:
© 2026 The Author(s). Journal of the European Academy of Dermatology and Venereology published by John Wiley & Sons Ltd on behalf of European Academy of Dermatology and Venereology.

Keywords

  • Darier disease
  • acantholysis
  • acantholytic disease
  • epidermal differentiation disorder
  • genodermatosis

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