Family quality of life among families with a member who has an intellectual disability: An exploratory examination of key domains and dimensions of the revised FQOL Survey

S. Werner, Maeghan Edwards*, N. Baum, I. Brown, R. I. Brown, B. J. Isaacs

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

54 Scopus citations

Abstract

Background: The Family Quality of Life Survey (FQOLS-2006) was developed as the result of increased interest in family quality of life (FQOL) among families with a member who has an intellectual disability (ID). The instrument includes nine life domains and six dimensions reflecting the main areas and characteristics of FQOL. The aim of the current study was to provide a descriptive analysis of the domains and dimensions of the survey and to explore their relationship to one another and to global satisfaction. Method: A convenience sample of 35 participants with a family member who had ID completed the FQOLS-2006 in a large urban centre in Canada. The data were analysed using descriptive analyses. Results: The findings showed that although participants differentiated between different domains and dimensions, as reflected in their variability, stability was also found. For example, support from others was rated lowest across most dimensions, while family relationships and health of the family were generally rated higher. Conclusions: The findings strengthen the importance of examining both the overall perception of FQOL as well as the perceptions in individual life domains. Moreover, they highlight the need to examine each life domain according to its various dimensions. In sum, the results call for further examination of the FQOLS-2006 as a useful tool for assessing FQOL and for implementing services based on it.

Original languageAmerican English
Pages (from-to)501-511
Number of pages11
JournalJournal of Intellectual Disability Research
Volume53
Issue number6
DOIs
StatePublished - 2009

Keywords

  • Developmental disability
  • Family quality of life
  • Intellectual disability
  • Measurement instruments
  • Quality of life

Fingerprint

Dive into the research topics of 'Family quality of life among families with a member who has an intellectual disability: An exploratory examination of key domains and dimensions of the revised FQOL Survey'. Together they form a unique fingerprint.

Cite this