Stigma and intellectual disability: A review of related measures and future directions

Shirli Werner*, Patrick Corrigan, Nicole Ditchman, Kristin Sokol

*Corresponding author for this work

Research output: Contribution to journalReview articlepeer-review

56 Scopus citations


The theoretical construct of stigma has received much attention in psychiatric disability research, leading to the development of widely used measures. Such measures have had real world impact in that they allow for the assessment of stigma change efforts. The study of stigma has not received the same level of attention for persons with intellectual disabilities. In this manuscript we evaluate existing measures of intellectual disability stigma through a systematic review of the literature. Twenty-four scales were reviewed and evaluated. Findings indicate a paucity of stigma measures based on theoretical conceptualizations pointing to a need for further development of measures to pursue the study of public, self, and family stigma as related to intellectual disability.

Original languageAmerican English
Pages (from-to)748-765
Number of pages18
JournalResearch in Developmental Disabilities
Issue number2
StatePublished - Mar 2012


  • Intellectual disability
  • Measurement
  • Scale
  • Stigma
  • Systematic review


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